Long story short:

I'm just shy of my 54th birthday and haven't hit mental pause yet.  I have developed some fibroids, the largest of which is about the size of a small egg.  As a result, my uterus is enlarged.  EDIT: My NP sounded "very concerned" when she said my endrometrial lining (my"stripe") was 1.5cm (15mm) at my last ultrasound a month ago.  Normal is 8 to 22mm.  Did she accidentally move the decimal over too far like I did when I originally wrote this?

No wonder my periods have gone from 50-60ml over 5 days to 300ml over several weeks.  My last one (thanks to a 3-week course of Provera that seems to have done more harm than good) was over a liter over 32 days.

Yes, I already use a menstrual cup.  That's how and why I know my quantities.  I "kiss my cup" on a regular basis for its convenience and for the information it provides for my doctors.

The Nurse Practitioner I've been seeing handed me off to a "real" Gyno and my first appointment with her is next week.  The NP says I probably have a D&C and/or a uterine ablation in my near future.

Looking the procedures up, I can see how they'd help with my super-thick lining EDIT: No, it's not! — but not necessarily my fibroids.  I read about embolization for them http://www.fibroids.com/the-embolization-solution/see-it-work but I have a feeling that even if my new Gyno does that (I doubt it), my lousy overpriced health insurance won't cover it.

So… finally my question:
Those of you who have had procedures to combat fibroids, what have you had done?

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10 Responses to Fibroids from Hell

  1. SboNobody says:

    Hi, I’ve just turned 40 and was diagnosed with fibroids after my periods became ridiculous (I didn’t have a cup so don’t know quantities – but a super plus tampon and two pads soaked every 45minutes…)

    GP started me of mefanamic and tranexamic acid tablets – they were supposed to reduce bleeding and pain – they didn’t work at all.

    So then the consultant put me on a Mirena – which was supposed to stop my bleeding – that didn’t work, I went from super heavy bleeding 10 days a month, to super heavy bleeding for 3 weeks and a slow trckle for teh rest of teh month – for 8 months straight.

    So then they gave me monthly injections, the name of which I can’t remember I’m afraid – the idea of which was to cause a fake menopause – that stopped my bleeding completely but could only be done for 6 months because of risk of bone thinning.

    That 6 months was grand, although it didn’t stop the symptoms from the several (one melon sized) fibroids in my womb.

    In the end I had a hysterectomy, as they couldn’t remove the fbroids independently (something to do with the way they were growing)

    I had some angst about that at the time, but Ive been womb free for 2 years know and I don’t regret it.

    I hope you can get your sorted in a way that works for you.

  2. 8idko says:

    Thanks for sharing. I hope I won’t need a hysterectomy but it’s in the back of my mind as an option.

  3. TreNo says:

    Hiya,

    Sorry, I’m a little confused. You say ‘normal’ is 8-22mm thick, and yours is 1.5cm, which is 15 mm. Did you get a unit of measurement wrong there?

    I hope lots of people can offer you help and advice here. Good luck!

  4. 8idko says:

    Oops, brain fart. You’re right. Somehow I moved the decimal over one spot too many. I wonder why my NP sounded “so concerned” when she read off that number. o.O Maybe she did the same thing…?

  5. EcrNet says:

    I’m curious as to your source of the normal endometrial stripe. I have endometrial hyperplasia (among other things) and my lining was at 22mm in December; my paperwork and all the various medical professionals I’ve seen say it should be no more than 15mm thick at any stage and around 8mm is what is expected, so I was just wondering if you had something different to look at! 🙂

    The D&C will remove the built-up lining for now, but that obviously doesn’t prevent it from rethickening. A frequent cause of said thickening is unchecked estrogen production, but I’m unsure of any other reasons.

    My partner has fibroids and had the embolization done about four years ago. It was successful but apparently they sometimes return after – hers has. She says it was an unpleasant experience, but worth it because of all the problems she was having at the time.

  6. 8idko says:

    I Yahoo Searched ENDOMETRIAL LINING THICKNESS which also added UTERINE to the search. Several of the sites say 8 to 22mm.

    I am skeptical of the D&C because yes, it strikes me as a temporary measure. I also have concerns about embolization and ablation. I’ll address them all next week with my new doctor.

    Because the ultrasound tech casually mentioned that one of my ovaries looked like it was about to ovulate, my body is apparently not ready to stop yet. But I’d be happy to go back to NORMAL periods until it does.

  7. Naceva says:

    I had a hysteroscopic laser D&C at 49 to remove one huge fibroid that was embedded (causing most of my problems) and I guess a whole bunch of smaller ones. Although my perimenopausal period bleeding eventually began to increase, the fibroids were gone for good. Because of your age, I’d tend to be optimistic that you’d only need it done once.

    ::snickers at “mental pause”::

  8. 8idko says:

    Thanks, that’s reassuring to hope that I’ll only need it done once. :o)

  9. EirFriut says:

    My mom had fibroids a few years ago. Her periods were so bad that when she stood up from a sitting position blood would sometimes run down her leg, even if she was wearing a pad. She was severely anemic for a long time because of it. She eventually had them …I don’t know what the medical term is, but basically cauterized/burned off. It was an outpatient procedure, my dad took her there and brought her home. It was a fairly easy procedure and totally successful.

  10. 8idko says:

    That cauterization procedure is an ablation. I have a feeling that I’m going to need one of those too. Will I also need a D&C beforehand? I hope not. It’s on my list of things to discuss with my Dr next week. But it’s good to know that the ablation took care of your Mom’s fibroids. :o) Hopefully mine too.

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