Heya all 🙂
Backstory: genderqueer (preferred pronouns “they”); stage IV endometriosis diagnosed two years ago (I’ve been symptomatic for about 8 years); list of treatments I’ve tried; currently continuously maxing out on mefenamic acid & paracetamol, as well as a daily anti-spasmodic & 10mg amitriptyline, topping up with codeine, diclofenac gel, TENS machine, hot water bottle, etc.
The Details: for the past two days I’ve been having significant pain spikes (up to 7-8 on this pain scale) when urinating. The pain is only in my lower abdomen right above the hairline, between my right hip bone (close to a laparoscopy scar) and underneath my belly button.
The Question: this is new and exciting – previous difficulty urinating has just been because I’m in enough pain that I can’t relax enough, rather than there being specific pain associated with urinating. I’m seeing my GP on Friday, but I’m not due to see my consultant again til late May. What I’m wondering is: does this sound to any of you like my bladder’s decided to join the party, adhesions-wise? At laparoscopy 2 years ago my bladder was totally clear, but I’ve been on and off menstrual suppressants since then so obviously things could have had a chance to grow. Failing that, any other bright ideas? My other main thought is pelvic floor involvement, but I’d be a bit surprised given I’m only getting pain spikes when urinating.
And a couple of clarifications: I’m asking this mostly out of curiousity, rather than because I think there’s anything I or anyone else can do about it 🙂 And I’m aware of endometriosis, but I don’t feel like it’s a sufficiently safe space for people who aren’t cis women, so I don’t feel comfortable asking my question over there.