I know I’ve asked a question like this before, but I can’t find it in my e-mail so I’m sorry that I’m re-asking.

I was diagnosed in 2005 with endometriosis. I was never told the extent out of it or anything. The past 2-3 months I’ve been having a lot of pain in my pelvic region right before I start menstruating. It’s been getting worse and worse as time goes on. I also have a Factor V Leiden protein deficiency. Is it possible to go on a hormone or anything else that would help control the pain that has less of a risk of causing a blood clot? I cannot take Aspirin because I am allergic to it, so I don’t really know how to control the pain. I haven’t seen a gynecologist since 2008, but will be going hopefully in 2-3 months.

Thank you.

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6 Responses to Endometriosis and Factor V Leiden

  1. Hteall says:

    Are you also allergic to ibuprofen?

    You will probably be offered hormonal birth control, which has the potential to lighten bleeding — one brand notorious for this, to the point where some people eventually get no bleeding at all during the placebo week, is Loestrin and its generics.

    A regular doctor could probably help with finding a painkiller, though I don’t know what specialist you might need to tell you the nuances of the protein deficiency — I am on tablet and can’t research it easily. A regular doctor, in the US, could also prescribe hormonal birth control, if you could see one of those before a gyno appointment slot comes up.

    I am sorry I don’t have better ideas! I hope you can get to a doctor soon.

  2. Kraous says:

    No, just aspirin.

    I could see a gynecologist earlier, but I have to get my ID card first. That’s why it would take so long.

    Thank you for the answer though. I really hope to get this taken care of soon. My mom had to have a total hysterectomy and the doctors didn’t know she had Factor V and she ended up with DVT.

  3. Emdere says:

    The BC’s with estrogen are usually NOT offered by a doctor to those who have blood clotting issues and even migraines.

    I have read of many people with Factor V Leiden and blood clotting issues that have taken certain kinds of progestin-only BC because some of them do not have the risk factor of blood clots like estrogen + progestin BC have.

    I refused to take estrogen + progestin BC because I don’t like the risk factors associated with it. So I am on a progestin-only BC and so far I like it.

  4. Kraous says:

    Does it help with pelvic pain? I’ve only been on a combo pill before, so I know nothing about birth control.

  5. Emdere says:

    I too have endometriosis and it’s helped immensely with pelvic pain and cramps during menstruation. I don’t bleed as heavily now, almost no clots, and not nearly as much pain. My menstrual cramps and pain used to be HORRDENDOUS!

    What I wish it would eventually do is stop my menstruation, but I am not sure if it will ever help that much. I’ve been on it for almost a few months, so I guess that’s still early. But it’s helped with the pain so much already and the flow is so light now, I am happy with it.

  6. Kraous says:

    Thanks. That’s very reassuring to hear. At least I know I can go on a hormone and not worry about the clot risk. My cramps keep getting worse every cycle that I have, and I’d rather nip it in the bud sooner rather then later.

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